I just received a call from my cardiologist. I am going to see him Monday, but he wanted to call to tell me that everything from the echo still looks great and my EF is now 60-65%. It was 55% last time. HOWEVER since my LVOT is still at 8, (remember it was at 75 before Camzyos) he said their protocol is to make me stop taking the medication!!! WHATTTT???? They said stop it for a month, have another echo in a month and go from there. I DO NOT want to start feeling miserable again! He said he knew I would have a fit, so he called them and asked why in the world this is written this way and they said ya, it shouldn't have been written that way. They went on to say that at this point if the cardiologist feels that it is safe and in the best interest of his/her patient's health and well being to stay on the 2.5, that he could override the protocol. He said my heart is actually doing better and he wants to keep me on it and do another echo in a month. He said he may get kick back from the specialty pharmacy but he was calling them. This is not OK! I know they have to be careful so we don't have heart failure, and this is all still new, but this is extremely stressful, knowing how good I feel now and how horrible I felt before.