← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@jaymaysea

Well, I am on day 12. I have not been feeling great since Sunday; sorta off feeling- a little lightheaded, more fatigued, some increased shortness of breath, blood pressure and heart rates are up.

So, after some back and forth pushing with my cardiologist, who said side effects are rare and did not think my symptoms were caused by Camzyos, he ordered an echo and got me in for it today. He is a Rock
Star, and a major advocate of Camzyos, so when he speaks the hospital jumps. I will report echo findings once I get them,

I hope these symptoms are temporary and the miracle drug will give me a better quality of life. I remain positive and hopeful.

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Replies to "Well, I am on day 12. I have not been feeling great since Sunday; sorta off..."

Good morning-I remember feeling that way about 2 weeks in. Dizzy and fatigued. We are so lucky to have great cardiologists! Please let us know the results of your echo. 🙂