What are people's experiences with spinal fusion surgery?

Posted by heatherm @heatherm, Oct 27, 2020

After trying pretty much everything, with little pain relief, my surgeon has put me on his priorty elective list for fusion of my L3/4/5, and maybe S1. I've heard both positive and negative experiences with this surgery. What are people's experiences, with this? ,

Interested in more discussions like this? Go to the Spine Health Support Group.

@ken82

@wheelerma ah, yes Spinal fusion.. The most important thing is to get a great surgeon.. my fusion was L4, L5, and the tailbone SI.. they used 2 plates, 6 screws, I had the procedure in Oklahoma City in 1995 because of an injury that pushed the vertebrae out of the stack about a third of the way... I have had NO Problems for the last 25 years.. I am now 83.. The procedure took 8 hours, I was in ICU for 4 or 5 days .. at home for about 20 days.. around the holidays.. I used crutches for a week or two.. then a cane for 30 days... During the surgery they took some soft bone from my hip to pack around the plates and screws..That bone hardened in the next year around the hardware that was left in.. Because the surgeons cleaned up the arthritic growth I have sooooo much less back trouble than many of my peers of the same age... I walk and do not hurt... That same doctor helped me with problems with my neck as he prescribed a Cervical Traction Device that a Physical Therapist taught me to use.. that too has been very helpful.. The Fusion was a good way to go ... Ken

Jump to this post

Boy that is certainly true that one needs to find a good surgeon. I had to take a hack ortho doc when my insurance wouldn't work for other docs. This ortho surgeon managed to cut the nerve on my left leg after a lumbar fusion. I lost the use of my left leg for four months........thanks goodness I started riding a stationary recumbent bike and was able to get my leg working again.......needless to say I will never walk into that doctor office again.

REPLY
@leslie49

I'm 73 and in 2021 completed my 9th spinal fusion. I have 3 levels fused in my neck; 8 levels of my thoracic spine and 5 levels of my lumbar spine. This has all happened over a 34 year period.

This all started in 1989 and still a part of my life. I would never have had such an active life without having these fusions. I know that one fusion usually leads to further fusions.......but one must consider what type of life they want to live. I had no plans on living in my recliner. I did give up tennis, but then played golf for 22 years. Have given that up and now play pickleball. I have more work to do and expect to figure out how to return to the pool as I am a big swimmer. Due to my 2021 8 level thoracic fusion surgery I have been unable to swim the freestyle and breast stroke as unable to life my head out of the water. I will not give up and work out in the gym regularily.........keep moving is my strategy and works for me.

Jump to this post

Congrats on the pickleball ! Yes, I share that strategy, to do as much for yourself as possible, with exercise, and activity.
I was told by the surgeon that I would never be able to move my back more than a 90 degree angle, to give up gardening and I would have to reach the floor by squatting. Is this your case as well?

REPLY

My story is very similar; I have had 9 back fusions (S-1 to T-12). However I continue to enjoy my life pretty good. I now have another disc protrusion and tear and go to my neurosurgeon Monday the 26 to see how to help with reducing the pain. I will not give in and sit on the sidelines!

REPLY
@upstatephil

Sadly I don't think you'll learn much by reading peoples' experiences. People are medically different, surgeons are of differing skill levels, and Person A's experiences might not be applicable to you. Said another way - probability stats for spine surgeries are, at best, gross indicators and may NOT be indicative of what you may experience...

I just have completed three planned surgeries in C and L and my strategy was this: (1) Select the best facility possible for the surgery. (2) Have all radiological work (and there's lots of that) done on the very best equipment there is. (3) Connect with a top-notch surgeon (I was adamant it had to be neuro rather than ortho). (4) Mutually develop a surgical plan/strategy. Then - just execute the plan and trust the process. Good luck!!!

Jump to this post

@upstatephil And how did your plan workout for you?

REPLY
@jenatsky

@upstatephil And how did your plan workout for you?

Jump to this post

Thanks for asking. The C4-7 has been amazing (now 4+ months post). Range of motion and cervical pain are noticeably better with continued improvement noted. It is early for a full understanding of the L2-5 work. I already notice elimination of random numbness in my legs which drove me to surgical intervention in the first place. I'm just 5+ weeks post so I'll need a few more months and some PT to be able to fully answer your inquiry. But I'm optimistic for sure.

REPLY
@upstatephil

Thanks for asking. The C4-7 has been amazing (now 4+ months post). Range of motion and cervical pain are noticeably better with continued improvement noted. It is early for a full understanding of the L2-5 work. I already notice elimination of random numbness in my legs which drove me to surgical intervention in the first place. I'm just 5+ weeks post so I'll need a few more months and some PT to be able to fully answer your inquiry. But I'm optimistic for sure.

Jump to this post

Good luck with your recovery and once you stop PT don’t ever cease exercising to strengthen your core and keep your weight healthy.

REPLY

I read your experiences with interest. I had spinal fusion L 4-5 and laminectomy 8 1/2 weeks ago. Doctors are under-medicating for pain now since they have been accused of over-medicating in the last few years. In the hospital for 4 days, the pain was constant agony even with the tiny doses of morphine/tylenol/tramadol/oxycodone. I went home and laid in bed for two weeks using a walker to get to the bathroom and yelling with pain every time I moved. Hubby helped me with everything I couldn't do. I made myself walk outside, my driveway, then 1/2 block, then 1 block, etc. I still have pain in one spot in my back constantly while sitting or standing. I do things for as long as I can stand it then have to lay flat to get some relief (not complete relief, just some). I can't bend over (they said I might never bend) so I'm wearing slip-on shoes and no socks. I use a 'grabber' tool to get things. Started physical therapy - I need to make my back muscles strong enough to hold my torso/shoulders/head up off of my spine. I don't know yet if I will ever be pain free.
Peggy

REPLY

PS: My surgeon interned at Mayo Clinic and was asked a few years ago to come back and give a lecture about spine surgery. He is probably very very good. This procedure is taking much longer to heal than they told me it would. Last week, his assistant prescribed prednisolone to reduce any inflammation left - I've been taking it but so far, that area of my back is still in constant pain.
Peggy

REPLY
@pfbacon

PS: My surgeon interned at Mayo Clinic and was asked a few years ago to come back and give a lecture about spine surgery. He is probably very very good. This procedure is taking much longer to heal than they told me it would. Last week, his assistant prescribed prednisolone to reduce any inflammation left - I've been taking it but so far, that area of my back is still in constant pain.
Peggy

Jump to this post

You're a few weeks ahead of me in recovery but I feel your pain and have been experiencing all the effects you've been experiencing. I firmly believe there's no exact roadmap to spinal surgery recovery. There are too many variables to permit an exact recovery timetable: (1) Different extent of surgery, (2) Different levels of pre-surgical physical condition, (3) Differing skill level of surgeons, and so on...I strive to experience some regular level of progress during recovery without focusing on exactly where I am in the recovery process. Have you been keeping a diary? I have since my cervical work in Feb. It really helps me gain perspective to re-read older entries to appreciate the progress I've actually made. Keep positive and future-focused. Best of luck!!!

REPLY

Some additional thoughts...In reading others' posts, I learn how often "extra" spine surgeries are required to fix some aspect of the original surgery that either didn't work or caused other unintended problems. Of course, those undesirable outcomes are possible...I managed those risks by selecting a "complex spine surgery specialist" who was also a neurologist-surgeon (not ortho). So far - after three planned and "normal" surgeries, I have not encountered any unintended post-surgical consequences. It's all about your work to manage/reduce surgical risk!

REPLY
Please sign in or register to post a reply.