I have a very similar condition, which has confused and perplexed doctors to know end. With mine, however, it has caused dysphagia - or difficulty swallowing - in addition to many of the issues everyone has listed here. I did get a diagnosis of muscle tension dysphagia after exploring hyoid bone syndrome, reflux, etc, etc. Sitting on surfaces causes a flare up super fast, as does using a computer, or misc other activities.
My biggest advance towards healing happened when I found a myofascial massage therapist. the culprit of all these issues? Stuck, tight, and unbalanced muscles of the next and throat. Specifically, the SCM, scalenes, and muscles of the hyoid. So far, we’ve treated everything but the hyoid, as we’re working outside in, but I’ve had huge relief. Dysphagia is disappearing and more. Out of all the crazy things I thought this could have been, I can’t believe it’s just muscles. Because of the sheer amount of nerves and important structures in the neck (cricopharyngeal for reflux and esophageal pressure for instance), you can get such a wide range of symptoms and pain.
Hello @jkirchgessner07, Welcome to Connect. Wow! That must have been extremely satisfying to have found a myofascial massage therapist and finally found some answers and relief. You might find this discussion started by @jenniferhunter helpful:
--- Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/.
Did the doctor who diagnosed you with muscle tension dysphagia suggesting trying myofascial release therapy?