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DiscussionDiagnosed with AL Amyloidosis. What can I expect?
Blood Cancers & Disorders | Last Active: Jun 28 11:19am | Replies (53)Comment receiving replies
Replies to "Hi @nick0820, I want to add my welcome. You may be interested in this video by..."
I would like to view the video but receive a message that it is not available. My husband was diagnosed in March with Wild AttR primarily impacted his heart. He recently had a fat pad biopsy that had a "negative" result noted on his portal. I'm trying to determine what that means. It has been quite a long haul and few medical providers in our area ... South Central PA.... have any experience with Amyloidosis. His last scheduled test is for a Nuclear PET Scan in two weeks. We are concerned with the lack of expertise including communication and management of this disease. Mayo Clinic is quite a distance. Are there telemedicine consultations available? Thanks.
Thank you so much Ginger! I will certainly review the links that you’ve provided! Greatly appreciated!! I am fearful and of course apprehensive— but I’m very hopeful all will be well following this journey! Thanks!