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DiscussionDiagnosed with AL Amyloidosis. What can I expect?
Blood Cancers & Disorders | Last Active: Mar 28 1:00pm | Replies (44)Comment receiving replies
Replies to "Thank you Ginger! I am surprisingly feeling very well at this time! I continue to go..."
Hi @nick0820, I want to add my welcome.
You may be interested in this video by Mayo Clinic experts. Martha Grogan is a leading specialist in amyloidosis
+ Video Q&A about Amyloidosis – What Patients Need to Know https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know/
I appreciate your willingness to continue sharing about your journey. Don't hesitate to ask questions too.
@nick0820 Please keep us in the loop of communication! It's great you are not letting this get you down, and We're with you, hoping for a good holiday season with your family. In 2015, when I was diagnosed with an ultra-rare kidney disease, the renal pathologist had said it might be amyloidosis, but until they had the last puzzle pieces from the kidney biopsy, they weren't sure. He knew it would be easier to treat that than what the final diagnosis was.
Ginger