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Diagnosed with AL Amyloidosis. What can I expect?
Blood Cancers & Disorders | Last Active: Mar 28 1:00pm | Replies (44)Comment receiving replies
@nick0820 Thank you for posting about your diagnosis and treatment. How are you feeling? Do they have any idea when you might be ready for the SCT? Here at Mayo Clinic Connect we are not doctors, but fellow patients and family members who share our experiences and offer support. Being able to "talk" to others in similar situations is critical for our mental health.
Ginger
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Thank you Ginger! I am surprisingly feeling very well at this time! I continue to go through normal daily activities such as work, travel - really no majors changes to my life at this time. I may get a little more tired than normal SOME days however for the most part there have been no drastic changes to my life on a whole. Even going through the Chemo treatments - I still feel very well!! In fact, I feel great!! I expect to be going through the preliminary testing for the SCT within the next 2-3 weeks. My local oncologists are hoping to have the procedure completed sometime in August 2019 - so I can be on the road to recovery during the Fall months. My goal is to be well enough to have a wonderful Christmas with my family!! I have learned a lot of great information on this site - I hope to continue to share my experiences with this rare - hard to diagnose - disease. Thank you so much Ginger!!