I have been recently diagnosed with AL Amyloidosis in March 2019. I was experiencing swelling of the feet and legs without any obvious reason. I went to to PCP where he ran a variety of blood test which determine Ped the lack of protein in blood - which he then followed up with urine test which confirmed the extreme amounts of protein. It wasn’t determined that a kidney biopsy was required to determine the root cause of the issue. The diagnosis of Amyloidosis was made following the results. The next thing required was the Bone Marrow Biopsy to establish what stage I was. Fortunately it was found early and received a Stage zero with minimal damage to my kidneys. I have just completed two cycles of Chemo (Velcaide) to get me to a point of remission in preparation for autologous SCT. Thank you for this forum!! - Nikki S