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Diagnosed with AL Amyloidosis. What can I expect?

Blood Cancers & Disorders | Last Active: Mar 28 1:00pm | Replies (44)
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@bob100

Thank you! Sherry was forgotten by the vascular doctor and as a result will not have the graft put in until the 27th of this month. It will take an additional 2 weeks to heal before they can use. Her kidney function is around 10% now and we have an appointment with her kidney doctor this Wednesday to find out what too do. It’s my understanding 10% is the bottom and dialysis is required. There are so many doctors involved with this disease that it’s hard to stay on top of them.

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Replies to "Thank you! Sherry was forgotten by the vascular doctor and as a result will not have..."
Rosemary, Volunteer Mentor | @rosemarya | Mar 21, 2019

@bob100, That is frightful that the graft procedure was delayed. Unfortunately things like that do happen. When I was referred to be scheduled for my pretransplant evaluation at my local transplant center, the scheduler quit, and my paperwork sat on the empty desk until I finally called my head doctor, who made it happen. I sincerely hope that she will heal quickly so that she can begin dialysis. It sounds promising to hear that there are several doctors involved in this.

Here is a new discussion, that I want to share. Kidney & Bladder- Support for Dialysis Patients
https://connect.mayoclinic.org/discussion/support-for-dialysis-patients/

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