Do not worry Jenrico. Your symptoms are common for AL but will improve the more you get chemo. As far as not qualifying for transplant, many folks do not have a transplant and the newer drugs seem to be as good as getting a transplant. It is important to eat prior to chemo and make sure you training yourself to drink a lot of water. You want to be well hydrated on chemo.

I do not know where you live but if you can try and attend an Amyloidosis support meeting. A very nice person named Muriel Finkel (muriel@amyloidosissupport.com ) runs these meetings across the country. If you email her she will respond. Here is the link to their website: http://amyloidosissupport.org/index.html. They have useful information and you can meet folks that have or are going through the same thing as you.

Be strong minded. It will get better.

TMousetis

I am fortunate to live an hour away from Rochester. mn. Am having the<br />
attention of great Amyloid specialists.<br />
<br />

@jenrico You are fortunate, indeed, to be near to Rochester. I just want to check in and ask how treatment is progressing. How are you feeling? Rosemary