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LDN dosing for fibromyalgia and ME/CFS
Fibromyalgia | Last Active: Apr 17 12:40pm | Replies (26)Comment receiving replies
@jmcaleavey Let me look around for a resource for you. This has been a lifesaver for my husband with chronic pain, probable central sensitization, fatigue, and his rheumatoid arthritis. He has diabetes and Stage 3 kidney disease, so many meds are off the table for him. After one month of titrating up from .5 mg to 2.5 mg he is still looking for the complete sweet spot, but he has his life back! His doc seldom uses more than 3 mg.
He is in a pain rehab program, with PT, a pain doc, a counselor, a Pharm D monitoring and managing his many meds. He has gone from a presence in the recliner to a participant in life. Even wrestle with our daughter's pup on the floor yesterday, and shampooed carpets for me.
So, to answer your question, Mayo doesn't have an article right now but here is one from Cornell:https://weillcornell.org/news/what-you-need-to-know-about-low-dose-naltrexone
Maybe you can ask your doc to refer you to a pain management doc or a doctor of pharmacy. You will also need access to a compounding pharmacy to prepare the med. If there is none near you, a local hospital pharmacy can usually handle it.
Sue
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Thanks for sharing; it’s great to hear about a positive experience with LDN. And that is the same article I came across when I was first looking into LDN 🙂
I hope that more people and providers hear about it, and eventually more providers will feel more comfortable prescribing it. When I first asked about it, I was disappointed to find that the first three of my specialists I spoke with weren’t comfortable looking into it or prescribing it. Thankfully, my new PCP had experience with it. So glad to hear your husband is doing well. Shampooing the carpet is no joke for someone with chronic pain! =)