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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 6 days ago | Replies (736)Comment receiving replies
I got a call from Camzyos Rx, they won’t be sending it out till tomorrow to arrive her Friday..
I won’t have taken it for 3 days by the time it gets here and then will wait until 0800 the following day to start again .. I’m trying to be consistent. Seems to be corrected with the pharmacy but I don’t have faith..
All still seems well at the moment with no degradation in effectiveness but to be honest I’m not pushing any physically challenging chores.
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Good-I am not at all sure that this yo-yo on our hearts is good, but being able to talk to each other is invaluable. My doctor is honestly frustrated-I am the first patient in the whole practice to do this. He feels like they reel us in with the 5mg dose-we all feel great, but then you don't get it on time or they change the dose etc., and then? He has LOTS of other patients besides me and he has been put on hold for over 30 minutes, when he needs to see other patients etc. He did what he needed to do but then I was put on hold getting the lower dose-which I was not happy about since I was feeling so good, while he had to fill out a prior authorization form AGAIN for the lower dose? He told the BMS reps to stop playing games. Good on him! I hope you don't feel the symptoms we all faced before you get your new meds. BMS needs to be held accountable... Thank you for updating. 🙂