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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 6 days ago | Replies (736)Comment receiving replies
I’m so irritated
The red tape is exhausting, I’m out of Camzyos no one can tell me what the 1/2 life is while I wait for it to get fixed.
Total days 35
5mg at 0800
Wt 267.3
Male 59yr
20oz coffee and 10oz of ice cold Dr Pepper. I’ve had absolutely zero adverse effects and the shortness of breath has diminished significantly. I haven’t changed my diet but I’m more active now because I’m feeling better..hopefully within the week I’ll get my meds and start this all over again.
I know this sounds weird but since starting Camzyos I dream vividly every night., I used to not.. anybody else?
Well I’ll pick this up when I get my meds and start again..
Have awesome days y’all
David
Replies to "I’m so irritated The red tape is exhausting, I’m out of Camzyos no one can tell..."
Hi David-That is SO irritating. The kinks are not fun. I have dealt with stuff like this too when my doctor had to change me from 5mg to 2.5, It was very stressful. I am also having very vivid dreams each night! Strange! We must be sleeping well! I hope this gets fixed tomorrow!
Kelli
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Hi David, Do you have a Nurse Care Manager assigned to you by BMS?
I was also someone who ran out of meds and went 6 days without (didn't notice any issues until day 5). A week after this event I had a regular check in from the nurse care manager and she advised that if this ever happens again to contact them and they will expedite a resolution.