I’m new to this group but have checked in frequently. Every time I open this group the tears flow. I suppose it’s because it proves to me that I’m not alone and my pain is real. I adored my father but I was raised to think that if you can get dressed then you’re fine and doctors are not necessary. He died when he was 42 years old.
I spend most of my time at home and rely on a small amount of oxycodone that is prescribed for me. I have pain throughout my body and I think my neck fusion from 12 years ago is failing. The neck and head pain are unbearable.
I have just started the process of getting a referral from my neurologist and the records required to be reviewed at a Pain Management Neurological Center at Oregon’s largest hospital, OHSU. It’s a 1 1/2 drive but a very highly regarded facility and my husband is available to drive me there. It would be nice to have a place closer to Corvallis where I live. I’m really afraid and I don’t want to go to just anybody.
I’m getting Botox injections in my neck muscles tomorrow which will be guided by an EMG. This is supposed to lessen my neck tightness and headaches.
I’m sorry I went on so long. I don’t have anyone to talk to who understands my pain and living with it. Thanks.