← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@nbs

It will be interesting in three weeks to see what my next echo shows. I don't feel as energetic on the lower dose as I did on 5 mg. My breathing is heavier walking up stairs and walking up hills. However, the weather is now hot and my OHCM is always worse in hot weather. I do feel better than when I wasn't on camzyos.
I am glad you are feeling well!! It is encouraging for all of us to know this drug works. In the original study they waited 30 weeks to determine if it was working on the patients in that study.

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Replies to "It will be interesting in three weeks to see what my next echo shows. I don't..."

Good morning! I feel the exact same way, being on 2.5mg now. I was only on 5mg for 62 days and was feeling SO GOOD! I was really disappointed to be switched so soon. I definitely feel much better than before I was on it, but yes, more tired and a bit winded. I had my echo Monday. Will meet with the dr. next Monday. Will report what he says. It is so awesome to hear how other people are doing on this journey! 🙂