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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (808)Comment receiving replies
Yes, thanks for that explanation. I like my cardiologist very much but he is not a big on details. (Not that I would necessarily understand them!)
I will like to hear that you are able to stay on Camzyos. It has certainly been a "rescue" for me. I am very appreciative of this forum and all of the helpful (and educated) support it provides.
I am not checking in to this forum as frequently as I should to read helpful updates. That is testament to how well I am feeling!
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It will be interesting in three weeks to see what my next echo shows. I don't feel as energetic on the lower dose as I did on 5 mg. My breathing is heavier walking up stairs and walking up hills. However, the weather is now hot and my OHCM is always worse in hot weather. I do feel better than when I wasn't on camzyos.
I am glad you are feeling well!! It is encouraging for all of us to know this drug works. In the original study they waited 30 weeks to determine if it was working on the patients in that study.