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Others out there with CEL (Chronic Eosinophilic Leukemia)?

Blood Cancers & Disorders | Last Active: 5 days ago | Replies (19)
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@mvoge

I am in the process of determining if I have Chronic Eosinophilic Leukemia. My eosinophil count has been 29,000 for 2 years without symptoms. Since December 2022 I have intense itching and rash in large and small patches. Swollen ankles, extreme fatigue and the eosinophil test is 31,000. In the next ten days I will have further labs and possibly an echocardiogram. I hope to have an answer soon because my quality of life has changed significantly.

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Replies to "I am in the process of determining if I have Chronic Eosinophilic Leukemia. My eosinophil count..."
Lori, Volunteer Mentor | @loribmt | Jun 20, 2023

Hello @mvoge. Oh my goodness, intense itching is the worst! I had that with some of my chemotherapy and medications…that was worse than any of the other side effects, I swear! I’m so sorry you’re having to endure that! Does anything bring you relief? I hope you find some answers with your labs and testing that are come in up!

I’m sure you’ve read everything available but I found some sites about possible causes of high eosinophils and how to reduce the levels. I know…if it were only that easy!

https://ayu.health/blog/what-is-eosinophilia-how-to-reduce-eosinophil-count/https://my.clevelandclinic.org/health/body/23402-eosinophils

Do antihistamines help at all? I had high eosinophil reactions to mosquito bites…do to a heightened immune response from my newly transplant bone marrow cells. I saw an immunologist/allergist who told me one of the first lines of defense after trying Benadryl or Claritin, is taking a proton pump inhibitor such as Pepcid. It worked to reduce the load. Just idea for you.

Good luck with your tests and finding answers!! Let what you find out, ok?

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