Had MGUS 15 years

I pray you are doing well with your treatment. I was diagnosed with MGUS a year ago, but I suspect I've had it a few years before diagnosis. When you had MGUS, did you ever experience a feeling of wooziness? Not dizziness. It's a feeling like I'm drunk! Worst when I stand (it is not my blood pressure), better when I sit down, and goes away completely when I lie down. It sounds positional of course. I have an appt with my ear nose throat doc at the end of August (took 4 months to get in to him!). Hematologist doesn't think it's from MGUS, but I wonder. I've seen a neurologist/neurosurgeon, endocrinologist, and of course, my PCP. No one can figure out the cause so far, and it has become debilitating.

@marvey, I've moved your post into the MGUS discussion which you can now find here:
- Does anyone else have MGUS?: https://connect.mayoclinic.org/discussion/mgus-diagnosis/