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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: May 18 6:58pm | Replies (554)

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@fredpassin6

Hi, read your story with interest. I had a spike I'm my glucose in December of 2022, and I got sensory Neuropathy. Like you my problem is mostly numbness in both feet which is getting worse weekly. Don't know when it will stop. I heard about protocol 525 and I have ordered it. Hope it helps me stop or reverse the progression. I am currently on a program from the Neuropathy Center in San Antonio, Texas. I use a laser boot 2 times a day and 3 different supplements daily. It's been about 2 months but no results yet. I know nerves take a long time to heal so I am sticking to it. If u r interested I can give u there number. Are you still able to drive?Any advice u can offer would certainly b appreciated. Oh, I am 81.

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Replies to "Hi, read your story with interest. I had a spike I'm my glucose in December of..."

Hi @fredpassin6, I just turned 80 a few months ago and am still driving. I hope to be able to drive as long as I can stay mobile and my feet feel OK. I do have some balance issues and have the senior shuffle down pat, especially in the winter time. I do think shoes are important and have always looked for comfortable ones but I've had to give up my go to Sketchers because the soles are too spongy and give me a sense that I could lose my balance due to weight shifting on the soles in different directions when I move. Kind of hard for me to explain. I recently bought some shoes with zero drop soles (no heels, flat thin soles) and they seem to work much better for me for walking. I do miss the cushion feeling and worry some about jarring sensation due to the weight of the body on the feet when walking. The funny thing seems to be that I can actually feel my feet on the ground which is better for balance.

I do think what is helping me the most is eating healthier, remaining active, exercising daily and keeping my weight down. I was always prediabetic and have been working on that the past few years with intermittent fasting and low carb, healthy fat eating. There is another discussion if you are interested in the topic:
--- Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

Hi Fred, I"m Sean . I'm just now 83 and living with this since two years ago. Idiopoathic since not diabetic or chemo-related. Mine was caused, I'm sure, by subdural hematoma in 2016. I take only supplements. No pain, just numbness in feet and lower legs, tingling and anything new I attribute automatically to neuropathy! Sudden bladder urge, worsening handwriting, anxiety, depression. I find exercise is key, so walk daily and swim several times/week. I find mushroom caps help greatly : lions mane, reishi and cordyceps. Also meditation daily, and stretching. Attitude is vital: I imagine how much worse it could be, like wheelchair or walker and I push forward. We're living longer than our biological history so something had to change and apparently this is what we get! Eventually everyone in the western world will get this; it's a matter of time. Simpler, calmer societies will be spared but probably live shorter life spans. I'll give you my number if you wish to message or call to compare notes.