@cherylgeo One other thing I wanted to mention, there is a Mayo Clinic based in London. You may wish to request an appointment to be seen there if it’s at all feasible for you. Mayo is an experience like no other and they offer hope.

Here is the website for the London based clinic. You’ll see a Request Appointment prompt, first thing on the page.
https://www.mayoclinichealthcare.co.uk/
What do you think? This is another option for you other than your usual medical care in the UK.