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My PN? What do you mean it's "progressive"?
Neuropathy | Last Active: Jun 23, 2023 | Replies (36)Comment receiving replies
I am not at your level of disability yet! You sound like a very brave person! I want to be able to travel again. Last year, I ended up in a wheelchair ♿️ after traveling to Detroit. I was visiting a great friend! She did not mind wheeling me around in a wheelchair! I want to be able to go again! I have worked hard to increase my strength and balance! I want to travel again. I look at it now as a challenge I can't wait to try! Thanks fir your note, Pat!
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I can surely relate to your issues as I have been dealing with progressive numbness and nerve pain for 10 yrs now.
I have weird symptoms also like my lips and cheeks are numb, can’t feel a catheter in my bladder, can’t feel an exam in my rectum, certain stomach areas also numb.
I was at the Undiagnosed Disease Network in Bethesda, part of NIH where they did a very extensive testing regimen over 5 days, and they could not diagnose me other than to say I had CIDP and that I was unique.
Not sure if cause is autoimmune, genetic,or something I was exposed to.
Right now my life is not as I would like it to be, mybalance is nonexistent, my feet hurt and are numb.
Regular day to day functions are hard for me, and I rely on my husband a lot for help.
I never thought this would be my way of life at 71.
I can’t even go to the beach, or go in the ocean, and I live in Florida.