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@elainejarrett

I have it also. Just wondering why you are having chemo as I was told you are treated with antibodies. Am I ignorant and thought Rituxan was not chemo? How are you doing? What kind of chemo and how did you do on it? Side effects? Is it working for you?

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Replies to "I have it also. Just wondering why you are having chemo as I was told you..."

Bendamustine and Rituxan along with Nuelestra. Combination of immunotherapy and chemotherapy. I have had 6 rounds and await my CT scan next month. Still got my hair and i combat fatigue with exercise. If i gave in and just sat around or laid down i feel sure i would have felt worse. No other treatment for SMZL. Not enough of us get it to warrant research.