Oh my goodness, Cheryl, you are in a world of hurt. I wish I could reach through this computer to give you a hug. You’ve been through so much medically in your life already and that alone is stressful and draining. I’m so sorry you haven’t been able to get in to see your hematologist for over a year! I can only imagine how hopeless and abandoned you must be feeling.
This level of bleeding you’re having isn’t normal and can be quite dangerous if you cut yourself or have any internal bleeding. Is there anyway to get an emergency consultation? You were in the army, are there any veteran services that could assist you in getting some medical help?

@cherylgeo One other thing I wanted to mention, there is a Mayo Clinic based in London. You may wish to request an appointment to be seen there if it’s at all feasible for you. Mayo is an experience like no other and they offer hope.

Here is the website for the London based clinic. You’ll see a Request Appointment prompt, first thing on the page.
https://www.mayoclinichealthcare.co.uk/
What do you think? This is another option for you other than your usual medical care in the UK.