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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 21 hours ago | Replies (399)

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@loribmt

Hi @chella65 I found a relevant discussion for you with other members who have PV and diet questions.

Here’s the link: https://connect.mayoclinic.org/discussion/polycythemia-vera-and-nutritional-ketosis/

Do you know if you’re having any swelling of your spleen? That can often be a side effect of PV if you feel full soon after eating, experience bloating or discomfort in your upper right abdomen.

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Replies to "Hi @chella65 I found a relevant discussion for you with other members who have PV and..."

I do not believe the doctor mentioned that from the tests. I'm searching now for a copy of it so far haven't found it but think I would have remembered that. I believe my spleen and kidneys were unremarkable with just some nodes in the bottom of my lungs that were very small and some cysts that were also small and diverticulosis.