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Fibromyalgia -- Need help on how to handle severe pain
Fibromyalgia | Last Active: Oct 29, 2023 | Replies (156)Comment receiving replies
Very good information, thanks for sharing. I've tried Flexeril (Cyclobenzeprine) as well as Tizenadine but couldn't handle the side effects. I did find Darvocet-100 to be the best pain relief years ago but it has since been taken off the market. Now it's just the Tramadol and Ambien at night. Some afternoons I take Tylenol because the Tramadol interferes with my sleep if taken after 2pm even with 5mg Ambien and I'm not keen on upping that. I've been on this combination and prior it was Soma for sleep since 1999 or so.
Finding what works is so important.
Replies to "Very good information, thanks for sharing. I've tried Flexeril (Cyclobenzeprine) as well as Tizenadine but couldn't..."
Do you take Tramadol every day? Did you have any trouble finding a doctor that would prescribe it?
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Interesting info about the meds that you tried. I've never taken Tienadine nor Darvoce-100 (while it was on market) but I have been prescribed Tramadol (as in Tylenol with Tramadol) and the Ambien. The tramadol is Never to be prescribed for a patient who is on cyclobenzeprine, as I discovered when the same doctor (my then-rheumatologist who had diagnosed the fibromyalgia) added the Tylenol-Tramadol medication. ONE dose and I had frightening hallucinations. When I returned and informed her, she gave a nervous laugh, and said "sorry, I didn't know..." You are supposed to know these things as a medial professional for goodness sake! So I left her practice, just couldn't and wouldn't deal with that. That's when I went to my husband's wonderful rheumatologist, the one who was so knowledgeable and ALWAYS cross referenced supplements and meds to rule out complications. Then another doctor prescribed Ambien for my inability to sleep longer than 20 minutes to an hour and jerking wide awake and stressed out. Supposed to help with sleep...had reverse effects on me. Slept up to two hours, then starkly awake for the day (as early as midnight!) and then overcome with desire to close eyes and sleep by noon time, and in a "drugged" state. So I dropped that pill. Can't take morphine or codeine either (hallucinations/night terrors). I could write stories based on my experiences that would make Stephen King take notice! Not much help when my system reacts so strongly and negatively to medications. I'm going to research the Soma that you include in your post, for personal knowledge and to add to my "data base." BTW: other meds that I cannot take are ALL antidepressants (night terrors, hallucinations, inability to follow a conversation, pounding headache with one in particular along with sensation of impending death), ALL statins, as well as Topamax and Depakote (both had been prescribed for severe migraines, but instead each had serious side effects). Had to get off Imitrex injectable, prescribed for those serious migraines due to having had pain INTENSIFY instead of decrease after injecting, making my brain feel like it was about to burst....Doctors just either are interested in working with me and helping, or they give off vibes of "hey, you are more trouble than what I want to take on..."👀. I advocate for myself. Exhausting on so many levels. BUT, I forge forward, and have plenty to be appreciative about.