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Did you gain weight on Tamoxifen? What helps?
Breast Cancer | Last Active: Jan 10 6:23pm | Replies (50)Comment receiving replies
Although I agree with more honesty and less nonsense. I would also add back into the conversation. “Cancer” with a big C, because when we are railing against our medicine ( I do it too ) we need to remember this is the monster we are fighting.
I don’t disagree that there will be some hardship and some things are harder than others. If weight gain is absolutely something you cannot abide then please talk to your doctor about trying a different endocrine therapy. Please don’t give this monster another shot at you without a conversation with your doctor.💕
How long have you been on Tamoxifen?
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Thank you for your sensitive and thoughtful response. I appreciate it.
I have been on Tamoxifen for four years -- with at least 6 to go. I had a very aggressive triple positive tumor -- thankfully caught early. I was very healthy then and able to tolerate high doses of chemo and lots of radiation. After four years on tamoxifen I am like an 85 year old version of myself at 50.
I know what you are saying and I do try to have perspective but some days I wonder what I am fighting for when I have so much difficulty tolerating Tamoxifen. I did ask the head of endocrinology and my oncologist and they were not able to recommend anything different.
It isn't just weight gain, it is devastating hot flashes and sweats and nausea and fatigue. I am in constant pain and I have lost my vitality. It is not a life I recognize. I was a runner. I ran 10 kms every day. I was fit and health and trim. I was strong physically and I worked hard to take care of myself with good healthy food and health supporting habits. I am not even remotely that person any longer and I cannot even look in a mirror. It is devastating.