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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 22 2:38pm | Replies (736)
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@jaymaysea

Hi Folks, I am on Camzyos Day 8. Sunday I was a little lightheaded. I walked a couple of miles on Saturday and I think my heart said — are you crazy. Still have not heard back from my Dr. But, today I feel better. So I am taking it easy.

Thanks to everyone for taking the time to let me know your symptoms.

The journey continues.

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Replies to "Hi Folks, I am on Camzyos Day 8. Sunday I was a little lightheaded. I walked..."
Debra, Volunteer Mentor | @karukgirl | Jun 19, 2023

That must be a weird feeling being lightheaded. I'm glad you feel good today...and look at you! Walking a couple of miles? That's great! Thanks for sharing your symptoms, like I said before, you never know who you may be helping by sharing your journey @jaymaysea! Day 8 already...wow time just flies! @kelliw noted her worst dizziness at around two weeks I think, so keep a sharp eye on yourself!

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