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Juvenile Hemochromatosis

Blood Cancers & Disorders | Last Active: Jun 26, 2023 | Replies (5)

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@johnbishop

Do you normally plan your conversations with your doctor? I've found that helpful to make sure that I don't forget to ask some specific questions that I was trying to get answered. I found this site quite helpful for coming up with a plan for my discussion with a specialist - https://www.patientrevolution.org/tools.

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Replies to "Do you normally plan your conversations with your doctor? I've found that helpful to make sure..."

Yes and I've also subscribed to the ornament app that stores your bloodwork and does a full system work up based on biomarkers, your age, gender, and basic overall health with past and current health issues and comes up with a personalized profile to help prepare for upcoming doctor appointments on what it thinks maybe should be evaluated or various blood test to discuss during your visit. I'm very impressed with this app and recommend to others who are trying and/or newly diagnosed and are in need of organizational help(what I refer to as ..their own personal assistant bc it is a bit scary and overwhelming at times ).