← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@jenywilliams

I'm a camzyos user 14 weeks of taking the drug. At the 12 week time, the drug was working but my heart doctor said we should try 10 mg. I had hives slight case that lasted 2 hours. My energy level is good and breathlessness is decreased. I am delighted and thankful for my improvements. I have a genetic heart defect with a hardened area. It was not an issue until a battle with cancer and chemo treatments. SO GRATEFUL

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Replies to "I'm a camzyos user 14 weeks of taking the drug. At the 12 week time, the..."

Hi @jenywilliams, welcome to Mayo Connect! You have come to the right place to share your story with other HCM/HOCM folks who are on Camzyos. I'm happy to hear you are showing improvements in your energy and the shortness of breath is better. Sounds like you have been through quite the battle. Cancer, chemo and now this heart issue. But here you are! You sound like a positive person and that sure does make a difference in our mental health as well as physically. It is super important that your cardiologist is up to date with HCM and Camzyos. It's also important that you learn as much as you can about your condition so you can ask the right questions and be your own best advocate. How often do you see your cardiologist? Have they noticed changes in your echo?