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Juvenile Hemochromatosis

Blood Cancers & Disorders | Last Active: Jun 26, 2023 | Replies (5)

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@johnbishop

Hi Marcy @mkempson42, I did a search of Connect and didn't find anyone who has posted about Juvenile Hemochromatosis but there may be members with experience and hopefully they will see your discussion. I'm not sure if you have seen the information on the National Organization for Rare Disorders NORD so though I would share it just in case.

--- Juvenile Hemochromatosis: https://rarediseases.org/rare-diseases/juvenile-hemochromatosis/

Has your doctor or care team suggested any treatment or therapy?

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Replies to "Hi Marcy @mkempson42, I did a search of Connect and didn't find anyone who has posted..."

I have a new doctor that I'm waiting to see for further evaluation of this.