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Fibromyalgia -- Need help on how to handle severe pain

Fibromyalgia | Last Active: Oct 29, 2023 | Replies (156)
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@turnbacktheclock

Hi Sue,
You’ve been very helpful in the Mayo sites you mentor in. I wonder if you are aware of a website that fibromyalgia/CFS patients have found helpful: You Tube’s Dan Neuffer CFS Unravelled. He was sick for years and got well. Through his experience and interviews with other sufferers/recoverers and other professionals , he developed a program called ANS Rewire. It aims to reset the autonomic nervous system, which has gone awry and causes the various symptoms, like pain, fatigue, etc.
thanks for your mentoring.
J

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Replies to "Hi Sue, You’ve been very helpful in the Mayo sites you mentor in. I wonder if..."
vellen | @vellen | Jun 18, 2023

It looks like Dan is making a pretty penny selling a book and some 10 minute video therapies. Correct me if I'm wrong?

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Sue, Volunteer Mentor | @sueinmn | Jun 18, 2023

I am always interested into new insights about pain and recovery from it, so I immediately jumped to the YouTube channel and listened to his first 8 videos. I am left with this question "Where's the Beef?" In this hour, he did not offer one single concrete exercise or example - just kept saying "listen to the interviews." So then I jumped to the "ANS Rewire" site (ansrewire.com) and learned this is all a sales pitch to sell his online program - this is definitely NOT for me.

I am attending a Pain Rehab Clinic offered through my health care network, working with numerous professionals (all covered by my insurance.) I get personal attention, a structured program of PT designed for me, visits with a psychologist, pain management doc, and more.

My go-to reference (I have finally ordered my own copy for under $20 so I don't have to keep borrowing from the library) is "The Way Out" by Alan Gordon & Alon Ziv. It is based on a great research study they did (and are still doing.)

Sue

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