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Body vibrations when falling asleep or waking?

Sleep Health | Last Active: 2 days ago | Replies (457)

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@rubyinparadise

Yes, I posted here: https://connect.mayoclinic.org/discussion/body-vibrations/?pg=28#comment-861870

The outcome for me was that I have Benign Fasciculation Syndrome (I get twitchy when I'm tired, stressed, or sleep-deprived), and I'm prone to Sleep Paralysis, as are others in my family.

I also did get tested for C9ORF72 via Genome Medical bc I was terrified that it could have been early stages of ALS. I think a lot of folks share this fear and I really recommend getting tested if you have any family history of that disease. It helped so much to learn that I don't have a pathogenic # of expansions on that gene, which means my kids cannot inherit it either. (A very unkind former family member suggested it, and I developed crippling health anxiety for over a year until I finally got tested.)

Bottom line: Find a good neurologist if you're really worried, and consider testing if that might apply to you. Wishing everyone long & healthy lives.

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Replies to "Yes, I posted here: https://connect.mayoclinic.org/discussion/body-vibrations/?pg=28#comment-861870 The outcome for me was that I have Benign Fasciculation Syndrome..."

P.S. I also have enough nerve impingement in my left brachial plexus area to create significant numbness & tingling, but not enough to show up on MRI/nerve conduction/muscle testing.

Ultimately I have been helped on that WAY more by finding a REALLY good physical therapist than I ever was by spending 6 months going to a chiropractor 2-3x per week.