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kimh33 (@kimh33)

Chronic dizziness and vestibular migraines

Ear, Nose & Throat (ENT) | Last Active: Mar 14, 2019 | Replies (40)

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@natvlk

Hi all,
I am 19 year old female and I have experienced chronic lightheadedness/dizziness nonstop for the past 5 months. I have had these dizzy spells in the past for a course of two years, but usually they would last a few weeks or go away with steroids given to me by my ENT. I have also been experiencing blurred vision and numbness/tingling in my left arm and leg. When I saw an ENT prior to this spell he gave me the steroids because he believed it was sinus congestion and inflammation. However, during the past 5 months nothing has helped this feeling. I went back to my ENT and he told me to see a neurologist. Neurologist was reluctant to give me tests because I am "young" but he agreed to because of the numbness i was experiencing. My MRI, MRA, and bloodwork all came back perfectly normal. The neurologist told me to see a counselor, as he thought it was anxiety/stress. I started seeing a therapist and psychiatric nurse whom have helped me emotionally a bit but I was still feeling sick so I went to my PCP and asked what do I do now. She had me see a specialist ENT and neurologist at Yale hospital both who told me I am most likely experiencing vestibular migraines. I was given an antidepressant, and two supplements to take and was also told to change my diet (very difficult for me to do because I am already on a strict diet for interstitial cystitis). I am still concerned because I don't know if anything is going to work. I asked if i could have a steroid and i was told no. I am having a hard time focussing on school and work and it is very stressful for someone as young as me to deal with.

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Replies to "Hi all, I am 19 year old female and I have experienced chronic lightheadedness/dizziness nonstop for..."

Which 2 supplements?

@natvlk I would recommend seeing a spine specialist and/or a physical therapist who has knowledge of rehabbing spine issues. When you get neck muscles spasms it can move your cervical vertebrae around which can cause dizziness. There are some spine issues that alter blood supply in the vertebral artery like Bow Hunter's syndrome. If you feel like you've eliminated other possibilities and no one knows, it could be a physical alignment problem that physical therapy may help. I am a spine surgery patient and have had muscle spasms cause dizziness.

Hey, i’m 21 and this sounds exactly like what I have been going through the last two months. I had had recurreent dizzy spells before (like over the the past year) and went to an ENT and they figured it was just from anxiety. I tried to ignore it, but now I have been lightheaded and dizzy every day for the past two months. Its like my vision is constantly blurry and grainy but gets worse when i stand up. i also have random numbness in my right arm and leg. Sometimes numbness in the back of my head and neck. My doctor thought it was just from muscle spasms in my neck so I started to see a PT for the past few weeks. I went to a neurologist and all my MRIs and spinal tap came back normal. They still can’t find the main reason why i am feeling dizzy which is so frustrating. Finishing school with this is getting tough. I got a nerve block in my neck muscles and was prescribed meclizine, setraline and topamax. I am hoping with all of that and PT i may start to fee normal again. I also started allergy medicine daily as I have heard that helps. Anyways you are not alone in this problem! What dietary changes did they suggest? @natvlk

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