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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 22 hours ago | Replies (854)

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@ravenh

I have it too, my white blood cell count was low so they checked it and said i have that. I used to walk several miles a day but was exhausted so i did not. I forced myself to start again. I am doing 3 miles at least 3 times a week. Much better now. but get some confusion at times, and also can become quite dizzy. UGH.

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Replies to "I have it too, my white blood cell count was low so they checked it and..."

Welcome to Connect, @ravenh. I’m happy you found this great support group with members who have MGUS and joined in the conversation! There are veteran members like @pmm, @cheft @leslie2121 @susanh824 @cherylmcg and others who were diagnosed with MGUS years ago.
Newer members to the MGUS club are @sissypuss @robinrossrn who learned more recently that they have this condition.

I hope you take the time to look through all the conversations. There are more discussions on MGUS so feel free to type in MGUS on the search box in Blood Cancers and Disorders. You’ll see quite a few different topics related to the diagnosis.
I’m posting a couple of good articles about Monoclonal Gammopathy of Undetermined Significance (MGUS) for you. Searching the internet can often lead to stress and anxiety. These are trusted sites where I think you’ll find some useful information.
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
https://www.healthline.com/health/how-serious-is-mgus
Have you met with a hematologist?

I have MGUS too and have a question about your dizziness. Is it a feeling of the room spinning or a feeling like you're drunk? I've had dizziness, but the feeling I have when I stand or sit is like I'm drunk. It has slowly worsened over the past year, and I have seen many different specialists trying to figure it out. I can't get into my ENT until the end of August. I was diagnosed with MGUS in July 2022, and my bloodwork is stable. I've had vertigo (dizziness), but this is different and goes away when I lie down. I too have lost my stamina, so recently purchased a stationary bike to try to get some exercise. I sometimes stagger, so don't feel safe going outside to walk.