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worsening symptoms after mengingioma craniotomy

Posted by trpj95 @trpj95, Jun 14, 2023

I had a craniotomy for grade I meningioma 6 wks. ago. They didn’t remove much tumor around optic nerve & critical arteries. I do have a bad cataract in my right eye. I have worsening symptoms & new symptoms. I am so scared it won’t improve. Anyone else experience this type of thing?

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pnorthey | @pnorthey | Jun 17, 2023

Same issue. Wish I was more help, but I having issues with left eye. Gets better than worse. Told I must wait to deal with it until I have final meeting with surgeon. Meanwhile…

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3 replies
trpj95 | @trpj95 | Jun 18, 2023
In reply to @pnorthey "Same issue. Wish I was more help, but I having issues with left eye. Gets better..." + (show)
@pnorthey

Same issue. Wish I was more help, but I having issues with left eye. Gets better than worse. Told I must wait to deal with it until I have final meeting with surgeon. Meanwhile…

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Sorry you’re having trouble too. I saw my team this past week and they think it will improve with time. I don’t feel so confident. Take care & let me know what they say about it at your next visit.
Tracy

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trpj95 | @trpj95 | Jun 26, 2023
In reply to @pnorthey "Same issue. Wish I was more help, but I having issues with left eye. Gets better..." + (show)
@pnorthey

Same issue. Wish I was more help, but I having issues with left eye. Gets better than worse. Told I must wait to deal with it until I have final meeting with surgeon. Meanwhile…

Jump to this post

Have you had your meeting with the doctor?

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1 reply
pnorthey | @pnorthey | Jun 28, 2023
In reply to @pnorthey "Same issue. Wish I was more help, but I having issues with left eye. Gets better..." + (show)
@pnorthey

Same issue. Wish I was more help, but I having issues with left eye. Gets better than worse. Told I must wait to deal with it until I have final meeting with surgeon. Meanwhile…

Jump to this post

Exactly same issue and response. Frustrated

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pnorthey | @pnorthey | Jun 30, 2023
In reply to @trpj95 "Have you had your meeting with the doctor?" + (show)
@trpj95

Have you had your meeting with the doctor?

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Mid
July. Not sure I can wait that long.

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1 reply
sarahk8 | @sarahk8 | Jul 1, 2023

Oh God that doesnt sound promising..I'm about 2 have that same thing in a few weeks..will let I know the result..wish me luck..lol

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trpj95 | @trpj95 | Jul 1, 2023

So sorry you are in waiting mode for your M.S. visits. Despite all the new symptoms I did realize I have one symptom that did improve. I don’t have dejavu anymore which doctors said was an aura/mild seizure.

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trpj95 | @trpj95 | Jul 4, 2023
In reply to @pnorthey "Mid July. Not sure I can wait that long." + (show)
@pnorthey

Mid
July. Not sure I can wait that long.

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Hang in there!

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bellachele68 | @bellachele68 | Jul 6, 2023
In reply to @sarahk8 "Oh God that doesnt sound promising..I'm about 2 have that same thing in a few weeks..will..." + (show)
@sarahk8

Oh God that doesnt sound promising..I'm about 2 have that same thing in a few weeks..will let I know the result..wish me luck..lol

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Same Sarah. I go in to Jacksonville on the 23rd for my craniotomy

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whiteflag | @whiteflag | Jul 6, 2023

With these not so good results is there anybody with good results. I’m scheduling surgery now.

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