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Fibromyalgia -- Need help on how to handle severe pain

Fibromyalgia | Last Active: Oct 29, 2023 | Replies (156)

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@heisenberg34

OK, let's try this again. The pain pump was surgically implanted in my abdominal wall after a successful trial. I had been on Gabapentin, Diazepam, and Tramadol since 2017. Those meds, along with a spinal cord stimulator (implanted in 2018) got me back to about 85% of normal. Then in Feb of 2021, all the pain returned like a sledge hammer. No one can explain it. Innumerable pain specialists were baffled. That left me with the option of the pain pump. Was put in on April 15 of this year. I believe it dispenses hydromorphone or some such morphine derivative. No pain relief at first. Took several readjustments of pump's output before I felt any relief. Even then it was minor. Another few adjustments began to offer real pain mitigation. After getting the remote set up a couple of weeks ago and getting another readjustment or two, I am able to work for almost a full day without screaming pain. The remote allows me to deliver a "bolus" or extra medication, if I am having a bad day. Usually heps a lot. The pain pump was a result of my own digging until I found a pain specialist who was willing to do the trial. The successful trial led to having a neurosurgeon do the implant surgery. No big deal. I only took a couple of Tylenol for a few days to help with incision pain. I was able to wean myself completely off the Tramadol. Is the pain pump perfect? No. Would I have preferred a surgical method of correction to get pain relief? Yes. But, this is the best thing I could have done, apparently. I thank the Lord for guiding me through this process. Please feel free to reach out for any other questions.

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Replies to "OK, let's try this again. The pain pump was surgically implanted in my abdominal wall after..."

Did you have any problems getting off the Gabapentin? Thank you.

The return of your pain being described as a sledgehammer is very familiar. I ended
up in so much pain and thought the fibro had simply gotten worse. Then ot got so bad that upon waking up, I couldn't get out of bed or walk without assistance. I went to the ER and they were baffled. I saw my general doctor a couple days later and I was diagnosed with Polymyalgia Rheumatica (PMR). It is rare to have both fibro and PMR but definitely possible.
Perhaps ask if you could get bloodwork done to check for it. There is more information on the PMR Board and sone very friendly and helpful people. It's worth a try because although there are side effects to prednisone, the best is being almost pain-free. Sadly it doesn't help with fibro pain, just the inflammation caused by PMR.
Good luck.