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DiscussionDiagnosed with PV: Anyone used a home hemoglobin testing kit?
Blood Cancers & Disorders | Last Active: Jun 17, 2023 | Replies (25)Comment receiving replies
Replies to "Hi an I am pancytopenic all my counts are low an usually need blood transfusions weekly..."
I'm opposite, too much blood with PV. Too bad I can't give you some of mine! Lol
I feel so fatigued and my count is probably around 11 now. I thought it might be because I'm down too low for me. Now I'm not so sure. I can't wait to get to my "new norm" and hoping for monthly blood drains (Vampire Visits as I call them) or even every couple months would be awesome.
Stay strong 💪 ✨️ 🙏