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@rosemarya

@lsheerin,
I had my successful liver and kidney transplant 14 years ago. I lived with the slowly increasing side effects of cirrhosis while being monitored my my PCP and GI. My disease, a rare one, was Primary Sclerosing Cholangitis (PSC ). after 8 years of monitoring I was referred to transplant center for evaluation. I quickly learned that the transplant process is complex and confusing. It is definitely not as Hollywood presents it to us! I began in Kentucky and was later transferred to Mayo Rochester where I received my successful transplant. I was actually evaluated twice, and each time I was reminded that the evaluation is one step - the beginning of my journey.
After my evaluation At both UofK and Mayo, the transplant center's selection committee met to discuss my situation to determine whether I was healthy enough to undergo surgery, or whether I had any health issues that needed to be resolved first. I remember that the waiting seemed like an eternity until I received notice that I was eligible to be listed for a transplant - when/if organ became available.

I want to share what Mayo Clinic says about liver transplant and the evaluation process.
"The goals of the evaluation process are to determine whether you:
- Are healthy enough to have surgery and can tolerate lifelong post-transplant medications
- Have any medical conditions that would interfere with transplant success
- Are willing and able to take medications as directed and follow the suggestions of the transplant team..."

Mayo Clinic Health Library
Liver transplant
https://www.mayoclinic.org/tests-procedures/liver-transplant/about/pac-20384842
lsheerin, I hope you will read and share this link with your daughter. Liver transplant is a complex and complicated journey.
When does your husband have his next doctor appointment?

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Replies to "@lsheerin, I had my successful liver and kidney transplant 14 years ago. I lived with the..."

Thank you, Rosemary. Congratulations on 14 years!!! Thanks wonderful. Luckily, my husband was fine with the entire evaluation. he is healthy enough for surgery, no other medical conditions and he is more than willing to take all medications. my biggest question at this point is when are they going to discuss him at the meetings to place him on the list. the coordinator I have is horrible. She gives no information, talks down to me, talks over me, says I ask too many questions, etc. I did call the social worker Friday afternoon. I'm hoping on Monday, I get some news that we have a different coordinator. I have no idea when his next appointment is. She tells me nothing. I have no direction and it's so frustrating. I hear of so many people having great outcomes and that keeps me going.
Tough times don't last, tough people do!!!