← Return to Polycythemia Vera: Just been diagnosed

Discussion

Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)

Comment receiving replies
@chella65

Yes, for approx 10 to 12 years I've ranged from osteopena to severe to extreme, currently at osteopena level. I've taken medications and for about 3 years Prolia which I asked to get off and started on pill form as the side affects were debilitating. I asked my hemotologist if my blood issue could be medication related because I don't recall having elevations prior to taking osteo meds but she advised no.
I also have elevated chlorestrol and hypothyroid. I take only osteo and thyroid meds. I'm working with my other main physician a DO taking a regiment of supplements and exercise and 64 oz of water. I have had changes where I have gotten infections when I hardly ever did before. More susceptible to thing.
This site is a wealth of information I haven't found other places. Thank you.

Jump to this post


Replies to "Yes, for approx 10 to 12 years I've ranged from osteopena to severe to extreme, currently..."

So glad to read your story. My story will officially start next month. Thankfully it's only taken me about 6 weeks to get in to see a hematologist. I'm a bit nervous - and my spouse is less than supportive. I think that's the hardest thing for me is the feeling I'm fighting this alone. I think this for sure will show a person's strength or not. I've decided to be strong and meet this thing head on. Thanks for your inspiring note. I think my strength comes from this group. Thank you folks! Carol