← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

Discussion
Comment receiving replies
@starbuck41

Sorry guys for the lengthy delay in updating my Camzyos journey.
So here it is
Weight 266.4
Ht 6’3
Age 59
So a couple things happened, the VA failed to get an echo cardiogram done on time so they didn’t send medication, that has since been remedied I received a 5 day dose after not taking it for several days, I will once again start my daily routine tomorrow;
Echo revealed that my gradient had decreased slightly even after not taking the meds for about 4 days. Cardiologist exam revealed nothing abnormal (side effects) I have not had any dietary changes
My blood pressure was 137/88..
Update; a few days ago I had lasik surgery done, results seem to be good but it’s gonna be a few weeks on that:
Still without taking meds for several days, no out of breath moments, and still I must admit my daily quality of life is better, did take a trip up to the mountains 10,ooo feet, no shortness of breath, dizziness or heart palpitations, I will start my 5mg dose tomorrow. My loyal sidekick Murphy is doing his best to be a “good boy “ lol.
I have also been prescribed
50mg motropolol daily
And a cholesterol med
Metformin 500mg daily
Oxycodone 10/325 as needed

I promise I’ll be doing the daily update now that it’s going to be a non issue with refills. I’m headed to Texas next week for a funeral but I’ll make time.
Until tomorrow my friends
David

Jump to this post


Replies to "Sorry guys for the lengthy delay in updating my Camzyos journey. So here it is Weight..."

Oh shoot! That must have been super frustrating, David.
@hansj had a similar experience and he started going backwards. I am so glad to hear you didn't suffer any terrible effects of falling through the cracks with the VA. Grrr.😡
I'm really glad to get an update on Murphy too. Good boy!
And you made a trip up over 10,000 feet too!
Side note: I had lasik surgery too. But a long time ago. It was like a miracle. But I needed reading glasses right away. Then I had a stroke last May and lost my sight in my left eye...so for about 20 years I was happy to see far away so clearly.
I'm sorry you have to attend a memorial service. You have a lot going on. Hope you are taking care of your mental/emotional side too. I know guys are not real keen on feelings and such. But it is important. Your HCM group is here for you 🙂
Take care Sir.
Keep in touch...