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Carboplatin Alimta and Keytruda Treatment: What's your experience?

Posted by schmeeckle64 @schmeeckle64, Jun 12, 2023

Hi! I will be starting Carboplatin, Alimta and Keytruda this coming Friday and I am wondering if there is anyone in this group that has or is still on this treatment. What are the side effects? How many treatments did you have? Did you feel normal a few days after the treatment? I am just freaking out and would love to hear from someone that has actually experienced the treatment. Thank you so much!!!

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dianemb | @dianemb | Jun 16, 2023
In reply to @cjj4848 "The Carboplatin, Alimta and Keytruda is the treatment regimen for ncsls stage IV that I began..." + (show)
@cjj4848

The Carboplatin, Alimta and Keytruda is the treatment regimen for ncsls stage IV that I began just yesterday and so far s good! I am not sure how many rounds I will be getting until after my next CT/PET scan.
I am curious to know what clinical trial you may be able to participate in. We have just started to look for clinical trials for this situation. Any guidance or names of trials that you may know would be appreciated and helpful and I start this new journey.
Thanks for sharing your experience and tips for tolerating this treatment.

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Don’t push yourself too hard these days after treatment. I have some serious sick days two to four days after treatment. As far as trials, I was advised to go to the U of Minnesota or the Mayo. Gratefully , Mayo has taken me on and the oncology team does the research, I am the patient patient hoping for the best. Best wishes to you on this path to better health.

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1 reply
schmeeckle64 | @schmeeckle64 | Jun 16, 2023

Alright ladies! I made it through my first treatment. So far so good. In fact this is the best that I have felt in a couple months. I hope and pray that this treatment works for all of us. I won't have a scan until after my second treatment. I was given 5 different nausea medicines that must have really done the job. Prayers and hugs to all of you. WE ARE GOING TO GET THROUGH THIS!!! No One fights alone! Please keep me posted on your progress!

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cjj4848 | @cjj4848 | Jun 16, 2023
In reply to @dianemb "Don’t push yourself too hard these days after treatment. I have some serious sick days two..." + (show)
@dianemb

Don’t push yourself too hard these days after treatment. I have some serious sick days two to four days after treatment. As far as trials, I was advised to go to the U of Minnesota or the Mayo. Gratefully , Mayo has taken me on and the oncology team does the research, I am the patient patient hoping for the best. Best wishes to you on this path to better health.

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Thank you for the reminder not to push too hard after treatment. When you're feeling good, the side effects can sneak up on you.
My oncologist mentioned clinical trials, so it got me thinking and looking into it further, then I saw your post.
I hope your treatment is successful and a there is a clinical trial that is right for you, if that is your next step.
Best wishes to you too as you travel to better heath as well. I will look for your posts to follwo your journey. Thanks for sharing.

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cjj4848 | @cjj4848 | Jun 16, 2023
In reply to @schmeeckle64 "Alright ladies! I made it through my first treatment. So far so good. In fact this..." + (show)
@schmeeckle64

Alright ladies! I made it through my first treatment. So far so good. In fact this is the best that I have felt in a couple months. I hope and pray that this treatment works for all of us. I won't have a scan until after my second treatment. I was given 5 different nausea medicines that must have really done the job. Prayers and hugs to all of you. WE ARE GOING TO GET THROUGH THIS!!! No One fights alone! Please keep me posted on your progress!

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I hope you continue to feel good days and days after your treatment! I am about 32 hours after my treatment and I still feeling pretty good! Prayers and hugs to you too!
Amen to "WE ARE GOING TO GET THROUGH THIS!!! nO oNE FIGHTS ALONE!"
Thanks for sharing.

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schmeeckle64 | @schmeeckle64 | Jun 17, 2023

Well I spoke way to soon. The nausea is kicking my Kester. Today has been a really bad day. The medicine is not even touching this. Any suggestions to help with the nausea????

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Mentor
Lisa, Volunteer Mentor | @lls8000 | Jun 19, 2023
In reply to @schmeeckle64 "Well I spoke way to soon. The nausea is kicking my Kester. Today has been a..." + (show)
@schmeeckle64

Well I spoke way to soon. The nausea is kicking my Kester. Today has been a really bad day. The medicine is not even touching this. Any suggestions to help with the nausea????

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@schmeeckle64, I hope you were able to reach out to your doctor. They should have additional options to combat the nausea. I've read that it just takes the 'right' combination that works for you. Fingers crossed that you are feeling better! Hugs.

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1 reply
schmeeckle64 | @schmeeckle64 | Jun 20, 2023
In reply to @lls8000 "@schmeeckle64, I hope you were able to reach out to your doctor. They should have additional..." + (show)
@lls8000

@schmeeckle64, I hope you were able to reach out to your doctor. They should have additional options to combat the nausea. I've read that it just takes the 'right' combination that works for you. Fingers crossed that you are feeling better! Hugs.

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Holy cow! I never thought I would feel this bad. It has been 4 days and still am not feeling well. I go in on Friday so I will definitely ask him if there is something else I can try.

Thank you!

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