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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Dang.
Well, I wish I could give you an example, but I have no experience with Camzyos. @kelliw and @hansj have a few months on you and I know they have been so willing to share their experiences...let's see if we get them to chime in about what to look out for in the first week. I think @starbuck41 was pretty active his first couple of weeks as well. It seems that we all are so unique and individual, no two people are alike and therefore probably we can't say "this is what to expect" the first week or so. I hope you are feeling calm, resolving to keep your positive attitude, and know you are already stronger than you thought you were!
It's a journey you are on...and each day may be different. Praying for peace and only good effects @jaymaysea.
Replies to "Dang. Well, I wish I could give you an example, but I have no experience with..."
Thank you Debra. I am feeling positive. After I got your note, I immediately sent my cardiologist a note asking what to do if I was having any side effects and what, besides dizziness and fainting, were some of the other things I should watch out for. Just another example of how helpful our Mayo Connect community is. I did not think to do that until you raised it.
FYI for those taking Camzyos. I put a drug interaction app on my phone. The list that BMS provides is extensive. But there are drugs which may have an interaction that are not on the list. For example, I used Astepro for my allergies yesterday thinking it was fine. Then I checked it. Turns out it can have an interaction with Camzyos, albeit it moderate. So Camzyos users I recommend before you take any drug look up whether it could potentially interact with Camzyos.
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Sorry guys for the lengthy delay in updating my Camzyos journey.
So here it is
Weight 266.4
Ht 6’3
Age 59
So a couple things happened, the VA failed to get an echo cardiogram done on time so they didn’t send medication, that has since been remedied I received a 5 day dose after not taking it for several days, I will once again start my daily routine tomorrow;
Echo revealed that my gradient had decreased slightly even after not taking the meds for about 4 days. Cardiologist exam revealed nothing abnormal (side effects) I have not had any dietary changes
My blood pressure was 137/88..
Update; a few days ago I had lasik surgery done, results seem to be good but it’s gonna be a few weeks on that:
Still without taking meds for several days, no out of breath moments, and still I must admit my daily quality of life is better, did take a trip up to the mountains 10,ooo feet, no shortness of breath, dizziness or heart palpitations, I will start my 5mg dose tomorrow. My loyal sidekick Murphy is doing his best to be a “good boy “ lol.
I have also been prescribed
50mg motropolol daily
And a cholesterol med
Metformin 500mg daily
Oxycodone 10/325 as needed
I promise I’ll be doing the daily update now that it’s going to be a non issue with refills. I’m headed to Texas next week for a funeral but I’ll make time.
Until tomorrow my friends
David