nodgabnoj- I'm sorry for the confusion, I thought you were referring to using cilantro oil on the body for GD affected areas. Are you ingesting your oil? I tried swallowing cilantro oil capsules initially and had no success, but fresh or fresh frozen blended cilantro put it into dormancy for years and when future outbreaks initially begin, as they have now 3 years later, I drink blended cilantro for weeks until the skin goes calm. I just blend 1/2 bunch with some water and chug it down Simple.
Have you or others tried putting cilantro oil on the skin?
I did the fresh/frozen Cilantro for over two years and believe it was a great benefit as my itching eventually disappeared for quite awhile. At some point a couple of years ago I surmised that the oil must have the same chemical properties that the fresh does, so I started to use it. As I mentioned, I just had a recent, but relatively small, outbreak after a period of remission. I immediately started to take the oil again, but two droppers instead of one. I can say only this: my itching has been minimal and dissipated to the point that I use my Cortisone cream sparingly. I am, at least up to this point, quite fortunate. My initial outbreak a number of years ago was awful. However, it has never returned to that level of irritation and I seem to be able to control(?) it with the Cilantro oil. It is quite disturbing that so little is known about this disease that causes so much emotional pain and physical suffering. My heart goes out to those who deal with this on a daily basis in a far more serious way than I have experienced.
I did the fresh/frozen Cilantro for over two years and believe it was a great benefit as my itching eventually disappeared for quite awhile. At some point a couple of years ago I surmised that the oil must have the same chemical properties that the fresh does, so I started to use it. As I mentioned, I just had a recent, but relatively small, outbreak after a period of remission. I immediately started to take the oil again, but two droppers instead of one. I can say only this: my itching has been minimal and dissipated to the point that I use my Cortisone cream sparingly. I am, at least up to this point, quite fortunate. My initial outbreak a number of years ago was awful. However, it has never returned to that level of irritation and I seem to be able to control(?) it with the Cilantro oil. It is quite disturbing that so little is known about this disease that causes so much emotional pain and physical suffering. My heart goes out to those who deal with this on a daily basis in a far more serious way than I have experienced.
Our breakout history is similar. I have read that some only experience one break out and have no recurrance. I had one full year then for 2 years my pattern was 6 months of activity and 6 months of dormance. It was still miserable but not disabling like the first year and with each break out it was slightly milder. That all ended with my last major break out in 2019 that is when I learned about cilantro on this site. Since there is little known about GD and cilantro helped us I will continue to use it when a recurrance even though mild happens. Yet I have to wonder if these mild breakout, barely noticeable, are simply part of the naturally progression of the disease or if starting up on cilantro again gets rid of reintroduced heavy metals.
I've been working in a fish restaurant for the past twenty years. I stopped eating tuna and swordfish about ten years ago, because of mercury, A friend of mine ate sushi almost every day for lunch until the hair on his body started falling off. He found out that it was due to all the tuna he had been eating. My cousin who is in his 80's today had all the fillings in his teeth removed and replaced about 4 years ago. After about 2 years of dormancy, my GD has reappeared, although in a limited way, thank goodness. It's just reminding me how insidious it is !!
I was first diagnosed with GD in 1992 via biopsy. Had no itch until 2007 when, after 18 months of misery, a new derm prescribed Gabapentin which worked for 13 years. It stopped working about 18 month ago and I'm using Eucerin Itch Relief when it's bad and Hydroxyzine at night to sleep. Eucerin Calming Body Wash might be helping a little, it's hard to tell. Just started Cilantro capsules a couple days ago and today ordered some Chlorella capsules.
In 2007 on a forum called Skincell, people used to talk about mercury and getting your old fillings removed. I thought that was a bit extreme and never considered it and still went into remission for the 13 years.
I know what it looks like and am interested in finding a way to lessen symptoms, I am 85 looking for ways to lessen severity and lessen symptoms, itch, red dots, etc.
I,too,have been suffering with rash and severe itching. It seems sometimes I can’t handle it anymore…24 Hours per day. Cannot tolerate clothing except white cotton loose fitting clothes. Have been to several doctors and all have been sympathetic but have no idea what is causing. Have tried all the medicines and topicals and nothing works.
Please post if you have any idea. Next step will be Mayo Clinic. Also 85….
I,too,have been suffering with rash and severe itching. It seems sometimes I can’t handle it anymore…24 Hours per day. Cannot tolerate clothing except white cotton loose fitting clothes. Have been to several doctors and all have been sympathetic but have no idea what is causing. Have tried all the medicines and topicals and nothing works.
Please post if you have any idea. Next step will be Mayo Clinic. Also 85….
I,too,have been suffering with rash and severe itching. It seems sometimes I can’t handle it anymore…24 Hours per day. Cannot tolerate clothing except white cotton loose fitting clothes. Have been to several doctors and all have been sympathetic but have no idea what is causing. Have tried all the medicines and topicals and nothing works.
Please post if you have any idea. Next step will be Mayo Clinic. Also 85….
Try ice packs on the areas that itch. Leave them on for as long as you can. So sorry for your pain. It's horrible. I also use CeraVe Itch relief cream. Also helps.
I was first diagnosed with GD in 1992 via biopsy. Had no itch until 2007 when, after 18 months of misery, a new derm prescribed Gabapentin which worked for 13 years. It stopped working about 18 month ago and I'm using Eucerin Itch Relief when it's bad and Hydroxyzine at night to sleep. Eucerin Calming Body Wash might be helping a little, it's hard to tell. Just started Cilantro capsules a couple days ago and today ordered some Chlorella capsules.
In 2007 on a forum called Skincell, people used to talk about mercury and getting your old fillings removed. I thought that was a bit extreme and never considered it and still went into remission for the 13 years.
Two things that SEEM to cause the disease are mercury and for me the shingles vaccine. No one knows for sure but they both keep showing up in the blogs here. My cousin, who is in his 80's had his fillings removed, not for GD.
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I put it in a smoothie along with other vitamins and supplements.
I did the fresh/frozen Cilantro for over two years and believe it was a great benefit as my itching eventually disappeared for quite awhile. At some point a couple of years ago I surmised that the oil must have the same chemical properties that the fresh does, so I started to use it. As I mentioned, I just had a recent, but relatively small, outbreak after a period of remission. I immediately started to take the oil again, but two droppers instead of one. I can say only this: my itching has been minimal and dissipated to the point that I use my Cortisone cream sparingly. I am, at least up to this point, quite fortunate. My initial outbreak a number of years ago was awful. However, it has never returned to that level of irritation and I seem to be able to control(?) it with the Cilantro oil. It is quite disturbing that so little is known about this disease that causes so much emotional pain and physical suffering. My heart goes out to those who deal with this on a daily basis in a far more serious way than I have experienced.
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2 ReactionsOur breakout history is similar. I have read that some only experience one break out and have no recurrance. I had one full year then for 2 years my pattern was 6 months of activity and 6 months of dormance. It was still miserable but not disabling like the first year and with each break out it was slightly milder. That all ended with my last major break out in 2019 that is when I learned about cilantro on this site. Since there is little known about GD and cilantro helped us I will continue to use it when a recurrance even though mild happens. Yet I have to wonder if these mild breakout, barely noticeable, are simply part of the naturally progression of the disease or if starting up on cilantro again gets rid of reintroduced heavy metals.
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1 ReactionI read today on the FB GD website, that after operations, several people with confirmed GD went in to total remission. Go figure.
I was first diagnosed with GD in 1992 via biopsy. Had no itch until 2007 when, after 18 months of misery, a new derm prescribed Gabapentin which worked for 13 years. It stopped working about 18 month ago and I'm using Eucerin Itch Relief when it's bad and Hydroxyzine at night to sleep. Eucerin Calming Body Wash might be helping a little, it's hard to tell. Just started Cilantro capsules a couple days ago and today ordered some Chlorella capsules.
In 2007 on a forum called Skincell, people used to talk about mercury and getting your old fillings removed. I thought that was a bit extreme and never considered it and still went into remission for the 13 years.
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2 ReactionsI,too,have been suffering with rash and severe itching. It seems sometimes I can’t handle it anymore…24 Hours per day. Cannot tolerate clothing except white cotton loose fitting clothes. Have been to several doctors and all have been sympathetic but have no idea what is causing. Have tried all the medicines and topicals and nothing works.
Please post if you have any idea. Next step will be Mayo Clinic. Also 85….
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1 ReactionSee above. Sorry
I’ve had Grover’s for 50 years. I always keep a spray bottle in the fridge with equal parts witch Hazel and water. Gives instant and temporary relief.
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2 ReactionsTry ice packs on the areas that itch. Leave them on for as long as you can. So sorry for your pain. It's horrible. I also use CeraVe Itch relief cream. Also helps.
-
Like -
Helpful -
Hug
2 ReactionsTwo things that SEEM to cause the disease are mercury and for me the shingles vaccine. No one knows for sure but they both keep showing up in the blogs here. My cousin, who is in his 80's had his fillings removed, not for GD.