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Adenocarcinoma with Neuroendocrine

Neuroendocrine Tumors (NETs) | Last Active: Nov 28, 2023 | Replies (18)

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@sergeanthick2

I had severe stomach pain for years, VA doctor gave me acid reflux medicine and been taking for years. It got so severe I had to call an ambulance to transport me to Lake Charles Memorial Hospital and upon doing testing, they determined I had issues with gallbladder. I immediately sent to the operating room where they removed gallbladder using the DaVinci Robotic Arms, and while in there, the cameras showed extreme amount of unusual growth on my liver. Dr Shimer removed the gallbladder entirely and sent it and several samples he cut from liver to pathology where they were not initially identified because of how rare this cancer is, BUT relentless testing, and also sending to Pathology Lab of Lake Charles, both confirmed the identity and had a PET/CT done where it is shown in left/right side abdomen to include liver as well. Will see Oncologist next week to see what happens next

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Replies to "I had severe stomach pain for years, VA doctor gave me acid reflux medicine and been..."

Wow, you have had quite the journey to diagnosis. Welcome to the team that none of us wanted to be on, but here we are. First of all, relax. NETs are not an immediate death sentence. I know, because I came close. A lack of diagnosis for years had me very ill. 9 months of chemo has me feeling the best that I have in years. Do you know if the oncologist is a NET specialist that works with a cross functional team? I think the terms used are multi-dimensional team? That is another thing. There are all kinds of big words folks use. I grew up around the corner from Rocky Balboa. I don't know too many big words. I keep a medical dictionary nearby and I ask people to dumb it down for me. A lot can't. My main oncologist said great and started drawing me pictures. I knew then that I had the right doctor for me. How else can we help?