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Bone pain from ET Jak2 taking HU

Blood Cancers & Disorders | Last Active: Jun 17, 2023 | Replies (7)
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@1995victoria

I've had shin bone pain (and toes) for at least 6 years now. The only thing that helped before ET diagnosis is nightly aspirin, just so I could sleep. The bone pain is only at night in bed???

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Replies to "I've had shin bone pain (and toes) for at least 6 years now. The only thing..."
bevjg | @bevjg | Jun 17, 2023

You should consider having it evaluated by a neurologist. I have neuropathy in both feet and ankles. At night it resembles bone pain. Now I'm on medication that helps but you just learn to live with it. It is not related to my ET or the HU that I take daily.

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