Sharin, so sorry to hear of your sons troubles. Seizure control is a journey for sure, and for many not a destination. You mentioned after the last seizure he was screaming at the end that he couldn't breathe. I'm sure all seizures are different, but when my daughter has gran mal seizures she is OUT and unresponsive anywhere from 15-25 mns before she can make sense verbally. If he can speak right after a seizure, I wonder if there is something else going on? Panic attack? Insulin drop? I've had to call ambulance several times and have never had an EMT say to let my daughter get up on her own. The seizure itself wears you out, no wonder he fell, they need to recover, not move unless they are in the street. You need to speak to your dr about having diastat in the house. A 10 minute seizing episode is very dangerous. Do you think the forgetfulness is an effect of the medications, or has he always had it?<br />
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sbruce <br />
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My son, Dan, has had hundreds of seizures in the last 49 years. No 2 seizures have ever been the same. There are many factors that could be the cause or the accumulation of all of the factors may be the problem. My biggest hurdle in all of this is I can't get a doctor to consider listening to me and analyzing all of the last 49 years of his life. Even before Dan was born I had a eptopic pregnancy that ruptured and I was told I was still pregnant the day after they did surgery on me. I was in my first trimester. Dan was born 7 months later, full term and a beautiful healthy looking baby. Of course this was in 1963. Back then the doctors had no idea what to expect from this situation so they suggested a medical abortion. I said NO. Dan was a happy baby and when he was 18 months old he fell off of the back porch and cut his head and had 6 stitches in his forehead on the right side. He had his first seizure when he was 3 years old. He was diagnosed with Frontal Lobe Epilepsy. The only test they had then was a EEG. He had several over the next several years. Dan had several jobs over a 25 year period until he was diagnosed with Diabetes. 8 months later he had a severe and unusual Grand Mal seizure that lasted about 15 minutes. The convulsion was so severe he shook all across the living room floor. His next Grand Mal seizure was in 2013 and that is the one he was screaming he couldn't breathe after the convulsion. I know how difficult this is to try and understand. I have talked to so many doctors and mental health professionals, that I have come to the point where I think they consider me crazy. This is all true. We are still trying to find the answer to Dan's loss of short and long term memory, loss of cognitive function, panic attacks, social anxiety disorder, agoraphobia, and tremors in his hands. He is on a lot of medications and I have tried to talk to his doctor about them and I get no satisfactory. Thank you for your input. I hope your daughter gets better medical help than my son has had. <br />
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