← Return to I have a son that is 52 years old and has had seizures since he was 3.

Discussion
Comment receiving replies
@rebeccamcroberts

Hi @sharin. My name is Rebecca - I'm one of the community moderators here at Connect. I'm sorry to hear about what you and your son are going through. I know how frustrating and scary it must be to not have answers.

It might help to know that there are other people on Connect who have had similar experiences, people like @TabMar and @kevinkelley. If you'd like to talk to them, you can find them here https://connect.mayoclinic.org/discussion/i-have-been-battling-with-a-seizure-disorder-since-i-was-2/

Have you thought about making an appointment at Mayo Clinic? If you go to this page http://mayocl.in/1mtmR63 you can find out more.

Jump to this post


Replies to "Hi @sharin. My name is Rebecca - I'm one of the community moderators here at Connect...."

Thank you for the information. We live in Vancouver Washington and I have only my pension for my son and I to live on. He is on Medicaid and this seems to be one of the obstacles we face when we deal with his medical issues. I wish he could come to the Mayo Clinic, but financially it is impossible. I have read almost every article I can find from your clinic on Dan's medical problems and even talked to a person at Standford University Epilepsy Center, but no one can answer my questions. Dan was able to work for 25 years and live with other people and was even married for 12 years, but when he was diagnosed in 2007 with Diabetes something changed. In August of 2008 he had a severe and unusual Grand Mal seizure. It lasted over 15 minutes and he bit his tongue. The convulsion was so bad he shook all across the living room floor. When the paramedics arrived he was lying face down on the floor and couldn't move. I talked to him and ask him if he could hear me, squeeze my hand. He did. We took him to the hospital, but they didn't do anything but a blood test. It said he didn't have enough Depokate in his system. When he returned to work a few days later he would come home and be very irritable. Complaining about his co-workers and everything at work. This was not my happy go lucky son that I had before the seizure. As time went on he started forgetting things. Now his short and long term memory is getting worse and he has a real hard time understanding directions and instructions. I can ask him to do something and if he has to wait a few minutes to do it, he forgets it. He has had a Neuropsychological Evaluation done last year and the psychologist says he can't be left alone. He can't drive anymore and he tires real easy. He has seen at least 9 different mental counselors and that many neurologists in the last 49 years. All I want is to know if the medications they are giving him are the correct ones and if there is anything more I can do to help him. <br />
<br />