← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@jaymaysea

I was blessed to have been referred to a cardiologist who specializes in HCM and is an advocate of Camzyos. That said, when I followed up with my regular cardiologist, who referred me to the specialist, she told that she didn’t know anything about the drug, didn’t understand how it worked, and thought I was headed to open heart surgery. It made a scary decision about whether to take the drug even scarier.

This group gave me the comfort to move forward. I am on 5 day. So far so good. I have not noticed a change yet-positive or negative.

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Replies to "I was blessed to have been referred to a cardiologist who specializes in HCM and is..."

I'm glad you are feeling good after five days...and thank you for sharing that information about your regular cardiologist being honest about not knowing or understanding anything about Camzyos. It was the right thing to do to get you in to see a specialist. Will you be able to stay in contact with the cardiologist over the weekend should any situations come up?