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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Hi, my name is Rebecca and I just recently was told that I will be started on camzyos. I have been so scared about this new step in my journey, but reading everyone’s comments on here is so encouraging. I know I have not introduced myself before this but I wanted to say a true heartfelt thank you to everyone in here, your wisdom, experiences, and words of encouragement to each other has helped me so much!
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Rebecca/@elmore71111, Welcome aboard! I am so happy to hear that being able to read about all these shared experiences has helped you make decisions about your future. It's a wonderful place, full of so much information. I know it must be very emotional thinking about not only having HOCM, but now needing to begin using a new drug that hasn't been around very long. If you have been reading on here, you probably have read that a lot of members have had terrific results that have changed their lives. Some have not been so lucky. I hope for you, that you are able to tolerate Camzyos and get your life back. It is really important to be followed by a doctor who is experienced in treating HCM. Do you know if your doctor is experienced in this disorder? Have you started on Camzyos?