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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (808)Comment receiving replies
How wonderful you live in an area with such great access to HCM experts! And you have an inside track with your husband's expertise. There are several others in this community from Canada as well, who have recently started Camzyos. @hansj for example has done really well. If you get some time, read the posts on here. Hopefully you will learn more from people who are on the same pathway as you.
Viral myocarditis? Yikes!! That must have been very scary 😮 I hope you are doing well now except for HOCM. Has your cardiologist been impressed with your test results? Did your LVOT pressures normalize?
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In reply to your question, I have only had one follow-up echocardiogram. It showed no change in gradient, if that is what you are referring to. She is glad that my symptoms have improved, and does not expect to see a change in the gradient so soon, especially in an older patient (I'm 74). Next echo is end of the this month. My expectation is no change in gradient for a few months, and perhaps will have to go on a higher does of Camzyos after the 4-month mandatory period on the lowest dose.